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Learning Disabilities Mortality Review (LeDeR)

Helping to improve the lives of people with learning disabilities

The Learning Disabilities Mortality Review (LeDeR) programme has been set up by NHS England to improve the health and social care of people with learning disabilities.

The North of England Commissioning Service (NECS) is supporting LeDeR by reviewing the lives of people with learning disabilities and drawing attention to good practice that can be replicated, and to potentially avoidable problems with care and treatment where improvements may be required.

Contacting families
To get as complete a picture as possible of a person’s life when completing the review, LeDeR reviewers contact family members and/or friends as well as health and care professionals.

In some cases, a reviewer will involve a number of health and care professionals in a multi-agency review. Family and friends will be invited to contribute to the review.

If you have any questions or concerns about the LeDeR review process or would like to contact one of the reviewers for a confidential conversation, please get in touch.

Contact us
Tel: 0191 217 2631
Email:  necsu.leder.programme@nhs.net

 

FAQs

Whose lives are subject to LeDeR reviews?

A review is carried out for every person with learning disabilities in England over four years of age. It is not a sign that there are any concerns about treatment or care, but an opportunity to identify good practice as well as areas where learning might help improve the future care of people with learning disabilities.

Why are families involved with LeDeR reviews?

Engagement with families is an important part of the LeDeR programme because family members usually have the greatest knowledge of the person’s life that is being reviewed and the care and support that they received. The unique perspective that families bring to the review process can make a difference to the lives of others with learning disabilities.

When would friends get involved?

Reviewers will normally contact close friends if family members are not available or if it is likely that friends would provide additional important information that may otherwise be missed.

What will family members and friends be asked?

The reviewer will ask family and friends about the person’s likes and dislikes, their general health, the place where they lived and the care services they received. Families and friends do not have to take part in the reviews but it is important that they have the opportunity to contribute should they want to.

Who carries out reviews?

Our reviewers are professionally registered health and care professionals, such as nurses and social workers, trained in how to complete LeDeR reviews.

What happens to the completed reviews?

Completed reviews are anonymised and analysed for common themes. Any lessons are shared nationally with local health services to improve the lives and care of people with learning disabilities.  The common themes are also published in the LeDeR programme annual report.

What is the legal basis for accessing patient information to complete the LeDeR reviews?

The National Health Service Act 2006 sets out the structure and operation of health services in England. Section 251 of the Act describes the legal basis for sharing patient information and applications to share information are made to the Secretary of State for approval.

The LeDeR programme has been scrutinised by the Confidential Advisory Group, and the Secretary of State has approved the use of patient data for the purposes of completing the LeDeR reviews. This approval provides the legal basis for health and social care professionals to share patient information with reviewers to enable the reviews to be completed.